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Characteristics and Long Term Outcomes in Patients with Esophageal Atresia


Thank you for your interest. This survey will look at characteristics and long term outcomes of patients with esophageal atresia. If you choose to participate, you will be asked some questions about your disease and treatment.


Do I have to complete the survey?

Participation is voluntary, meaning you can opt out, but we hope to use the information to help improve care for patients with esophageal atresia.


Who can take the survey?

This survey is for patients with esophageal atresia of all ages AND parents/caregivers of patients with esophageal atresia. If you are younger than 18 years, please fill this survey with your parent or guardian.


How long does the survey take?

This survey should take no more than 20 minutes. You can stop at any time and continue where you left off later.


Do I have to answer all the questions?

All questions are optional. If any question makes you uncomfortable or you don’t want to answer, you can skip it.


Is the information safe?

The information you provide is completely confidential. We will not share your information without your permission. You will not be contacted by any member of the research team.


How will my information be used?

The information you give us will be studied by our research team. It will be used to improve healthcare delivery to patients with esophageal atresia.


If you have any further questions regarding your rights as research participants please contact the University of North Carolina Institutional Review Board (email:, phone: 919-966-3113) If you have any study related questions please contact the Research Team (phone: 919-966-2511).  UNC IRB #16-1785 (Approved 7/5/16).


Thank you for helping us. We believe this project has excellent potential to improve healthcare



Evan Dellon, MD, MPH